My son's disability is invisible.He doesn't have beautiful almond-shaped eyes, hearing aids, or a wheelchair.
You will see him stim with his hands or if you are in our home lately a sock, but other than that at first glance his disability is nearly invisible.
Instead of an outward tell-tail, his brain is uniquely wired.
His brain isImpressive
Invisible disabilities are funny. They are deemed cute and passable when they are toddlers. However, when the toddlers become children they are deemed bratty and out of control. They are deemed to be bad parents who can't discipline. They are loud, explosive, and sometimes scary. They are met with stares, gawking, and judgment.
One in sixty-eight children is on the spectrum.Where are they?
We go to public libraries, playgrounds, children museums, water parks, amusement parks, and arcades.
Very rarely do I see other children in public who have the same invisible disability as my child. Very rarely do I see flapping hands, rigid thinking or a mom setting a timer on her phone.
Where are they?
Invisible disabilities do not have a pass. There is no get out of jail free card and without this card, some parents choose to hide.
I refuse to hide my child.
He will not become invisible.
We will not become invisible.
Even though you can't see it, it is there. Your gawking and staring used to shake me. I used to feel that I need to explain. I used to jump to tell you a diagnosis that you were not entitled to. I used to be embarrassed, and say things like, "we are working on it".
I am done.
My emotions have changed me. They have ignited a fire deep within my soul.
I don't and I won't explain my son.
My son and his invisible disability have a place in this world.
He belongs as much as anyone else does,
So please stop staring.
xoxo - the chaos manager